Αρχική World News Countdown to 100,000 OncoLife Survivorship Care Plans: What is a Survivorship Care...

Countdown to 100,000 OncoLife Survivorship Care Plans: What is a Survivorship Care Plan?

In April of 2007, OncoLink launched the OncoLife Survivorship Care Plan, a tool to create care plans for people who have survived cancer. As that tool reaches the milestone of 100,000 care plans created, OncoLink’s Managing Editor, Carolyn Vachani, explains what a survivorship care plan really is – and is not.


In 2006, The Institute of Medicine (IOM) put out a report called From Cancer Patient to Cancer Survivor: Lost in Transition. This report was the first to really shine a light on what life after a cancer diagnosis and treatment looks like and the many ways the healthcare system was failing these survivors. One piece of the report that got a lot of attention was the recommendation that all survivors receive 2 things at the completion of treatment: a treatment summary and a survivorship care plan (SCP). Over the years, the distinction between these has become blurred. But make no bones about it, these are 2 distinctly different documents that are important in their own way.

What is a treatment summary?

The main goal of a treatment summary is for you to have a record of the cancer treatments you have had. It should include:

  • Any surgery for the cancer.
  • Radiation therapy (with location and dose).
  • Any medical therapies such as chemotherapy (including doses), immune therapy, and hormone therapy.
  • Any other cancer treatments such as interventional radiology treatment. 
  • Pathology information and molecular testing results.
  • Ideally, the summary will also include any concerns you had during treatment such as reactions, toxicities, or treatment delays.

I think of this document as “provider-facing” – meaning it is most important to healthcare providers—all of them, not just those in cancer care. This includes giving a copy of this summary to your primary care provider. Don’t get me wrong, you should have this document in your files to be able to provide it to any future healthcare providers or reference it if questions arise. But you likely want to know more, and this is where the SCP comes in to play.

What is a survivorship care plan?

The IOM had lofty goals for the SCP – and rightfully so! They wanted this document to be your guide as you move from frequent oncology appointments to survivorship and self-advocacy in your healthcare. The SCP should provide:

  • Information about long-term and late effects of all the treatments you got.
  • Plans for follow up care.
  • Appropriate screening for other cancers.
  • Symptoms to report to your provider.
  • Healthy living tips.
  • Resources for practical concerns like fertility, insurance, employment and coping with life after cancer.

The SCP is the “patient-facing” document of this pair. Including all of this information gives you a resource guide – something you might refer to over the years to get some guidance on a current concern. Oncology providers already know this information – but our patients and their caregivers do not. That is what makes a thorough SCP so important. We cannot expect our cancer graduates to advocate for their own healthcare without this information. 

In many cases, a survivor’s primary care provider does not know this information either. Who is at risk for cardiac (heart) issues, hypothyroidism or bone health concerns due to cancer treatment is not top of mind for a PCP. But an educated patient can bring that information to them. This is why OncoLife also provides a “Healthcare Provider Summary” version of the SCP – it is meant to be given to your non-oncology providers as a reference for future needs. 

I hope this treatment summary and SCP 101 gives you some insight into the importance of SCPs in helping survivors manage the transition to life after cancer. I also hope it gives you the nudge to get one. If you haven’t received an SCP from your provider, ask them for one. If they cannot provide you one, you can create one on OncoLink. A treatment summary is helpful, but information, education, and tips to manage challenges you may experience after treatment are essential for your health and well-being.


Carolyn Vachani is an oncology advanced practice nurse and the Managing Editor at OncoLink. She has worked in many areas of oncology including BMT, clinical research, radiation therapy, and staff development. She serves as the project leader in the development and maintenance of the OncoLife Survivorship Care Plan and has a strong interest in oncology survivorship care. She enjoys discussing just about any cancer topic, as well as gardening, cooking and, of course, her sons.

Source

NEWSLETTER

Συμπληρώστε το email σας για να λαμβάνετε τις σημαντικότερες ειδήσεις από το ogkologos.com

Βρείτε μας

2,449ΥποστηρικτέςΚάντε Like
57ΑκόλουθοιΑκολουθήστε

Διαβαστε Επίσης

Καρκίνος και Κορωνοϊός (COVID-19) ΜΕΡΟΣ Α

Εάν είστε καρκινοπαθής, το ανοσοποιητικό σας σύστημα μπορεί να μην είναι τόσο ισχυρό όσο κανονικά, έτσι μπορεί να ανησυχείτε για τους κινδύνους που σχετίζονται...

ΠΑΓΚΟΣΜΙΑ ΗΜΕΡΑ ΚΑΡΚΙΝΟΥ

Η Παγκόσμια Ημέρα Κατά του Καρκίνου καθιερώθηκε με πρωτοβουλία της Διεθνούς Ένωσης κατά του Καρκίνου (UICC), που εκπροσωπεί 800 οργανώσεις σε 155 χώρες του...

ΕΞΕΛΙΞΕΙΣ ΣΤΗ ΘΕΡΑΠΕΙΑ ΤΟΥ ΜΗ-ΜΙΚΡΟΚΥΤΤΑΡΙΚΟΥ ΚΑΡΚΙΝΟΥ ΤΟΥ ΠΝΕΥΜΟΝΑ (ΜΜΚΠ)

ΕΞΕΛΙΞΕΙΣ ΣΤΗ ΘΕΡΑΠΕΙΑ ΤΟΥ ΜΗ-ΜΙΚΡΟΚΥΤΤΑΡΙΚΟΥ ΚΑΡΚΙΝΟΥ ΤΟΥ ΠΝΕΥΜΟΝΑ (ΜΜΚΠ) Γράφει ο Δρ Παπαδούρης Σάββας, Παθόλογος-Ογκολόγος   Ο ΜΜΚΠ βρίσκεται αναλογικά στο 80% και πλέον του συνολικού...

Διατρέχουν όντως οι καρκινοπαθείς μεγαλύτερο κίνδυνο λόγω κοροναϊού;

Σε πρακτικό επίπεδο, τα δεδομένα των σχετικών μελετών υποδηλώνουν ότι η χημειοθεραπεία ή οι άλλες αντι-νεοπλασματικές θεραπείες δεν αυξάνουν σημαντικά τον κίνδυνο θνησιμότητας από...

FDA: Η ακτινοβολία των smartphones δεν προκαλεί καρκίνο

Σε μια νέα έκθεσή της, η Υπηρεσία Τροφίμων και Φαρμάκων (FDA) των ΗΠΑ αναφέρει ότι επανεξέτασε τις σχετικές επιστημονικές έρευνες που δημοσιεύθηκαν τα τελευταία...

Νέα ανακάλυψη, νέα ελπίδα για τον καρκίνο

Ένα νεοανακαλυφθέν τμήμα του ανοσοποιητικού μας συστήματος θα μπορούσε να αξιοποιηθεί για την αντιμετώπιση όλων των ειδών καρκίνου, σύμφωνα με επιστήμονες του πανεπιστημίου Cardiff...
- Advertisment -

Ροή Ειδήσεων

Despite Proven Safety of HPV Vaccines, More Parents Have Concerns

October 22, 2021, by NCI Staff Credit: National Cancer Institute Despite more than 15 years of consistent evidence that HPV vaccines are safe and effective, a...

FDA Approves Atezolizumab as Adjuvant Treatment for Non-Small Cell Lung Cancer

On 15 October 2021, the US Food and Drug Administration (FDA) approved atezolizumab (Tecentriq, Genentech, Inc.) for adjuvant treatment following resection and platinum-based chemotherapy...

Breast Cancer Survivor Uses Comedy to Spread Awareness and Address Disparities

Suzette Simon lost her mother to breast cancer. In 2020, she learned that she had the disease, as well. Realizing how much harder breast...

Why Wearing Comfortable Clothes During Cancer Treatment Matters

Voices on Cancer is an award-winning Cancer.Net Blog series where advocates share their stories and the lessons they have learned about being a cancer advocate. Cindy Trice is...

Breast cancer surgery: ‘I’m proud of the tattoos inked across my chest’

Wendy had a double mastectomy in 2017 and remained flat. “When the consultant told me, I remember crying and saying that I have 2 young...

EMA Recommends Granting a Marketing Authorisation for Zanubrutinib for the Treatment of Waldenström’s Macroglobulinaemia

On 16 September 2021, the European Medicines Agency’s (EMA’s) Committee for Medicinal Products for Human Use adopted a positive opinion, recommending the granting of...