{"id":6734,"date":"2019-05-30T18:30:19","date_gmt":"2019-05-30T18:30:19","guid":{"rendered":"http:\/\/cmshub.wpengine.com\/?p=248597"},"modified":"2024-11-03T15:17:12","modified_gmt":"2024-11-03T15:17:12","slug":"doctors-say-girl-has-vanishing-bones-that-are-slowly-disappearing-from-her-body-as-she-ages","status":"publish","type":"post","link":"https:\/\/ogkologos.com\/en\/doctors-say-girl-has-vanishing-bones-that-are-slowly-disappearing-from-her-body-as-she-ages\/","title":{"rendered":"Doctors Say Girl Has \u2018Vanishing Bones\u2019 That Are Slowly Disappearing From Her Body As She Ages"},"content":{"rendered":"<p><span itemprop=\"articleBody\">Shortly after welcoming their daughter into the world, Norma Villegas and her husband noticed baby Natalia just wasn\u2019t developing as quickly as they hoped.<\/span><span itemprop=\"articleBody\">Norma could tell something was \u201coff\u201d with Natalia, but doctors wrote off any strange developments (or lack thereof) as typical baby issues. When Natalia turned 9 months old, though, and nothing had been resolved, her parents went on a mission to learn what was really going on with her.<\/span><span itemprop=\"articleBody\">After months and months of extensive research \u2014 led by the medical team at Shriners Hospital for Children in St. Louis \u2014 Natalia was finally diagnosed with idiopathic multicentric osteolysis (IMO) at the age of 2 years old.<\/span><span itemprop=\"articleBody\">Natalia was born with IMO, which means her body is constantly and gradually absorbing the calcium intended to keep her bones strong and healthy.<\/span><span itemprop=\"articleBody\"><br \/>\n<\/span><span itemprop=\"articleBody\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-248653\" src=\"https:\/\/blog.thebreastcancersite.greatergood.com\/lt-vanishing-bones\/\" alt=\"\" width=\"1200\" height=\"627\" class=\"size-large wp-image-248653 lazy\" data-src=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2019\/05\/bones-1200x627.jpg\" data-srcset=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2019\/05\/bones.jpg 1200w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2019\/05\/bones-300x157.jpg 300w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2019\/05\/bones-600x314.jpg 600w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2019\/05\/bones-768x401.jpg 768w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2019\/05\/bones-1000x523.jpg 1000w\" data-sizes=\"(min-width:1600px) 992px, (min-width:1200px) 768px, (min-width:518px) 480px, (min-width:325px) 320px, 300px\"\/><\/span><span itemprop=\"articleBody\">Photo: YouTube\/BBC Three<\/span><span itemprop=\"articleBody\">In essence, Natalia\u2019s bones are slowly disappearing the older she gets, hence IMO\u2019s nickname as the \u201cvanishing bone disease.\u201d<\/span><span itemprop=\"articleBody\">IMO is incredibly rare; there are only 100 known cases, and there is currently no cure.<\/span><span itemprop=\"articleBody\">Natalia, now 14 years old, lives with near-constant pain and fatigue, and she is wheelchair-bound.<\/span><span itemprop=\"articleBody\">But as you\u2019ll see, this incredibly strong, vibrant, and independent teenager is not letting her disease keep her from living a full and happy life.<\/span><span itemprop=\"articleBody\">Learn more in this video.<\/span><span itemprop=\"articleBody\"><span class=\"empty\">Proper BCS greatergood_ctg_abovevideo<\/span><\/span><a href=\"https:\/\/blog.thebreastcancersite.greatergood.com\/lt-vanishing-bones\/\">Source<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Shortly after welcoming their daughter into the world, Norma Villegas and her husband noticed baby Natalia just wasn\u2019t developing as quickly as they hoped.Norma could tell something was \u201coff\u201d with Natalia, but doctors wrote off any strange developments (or lack thereof) as typical baby issues. When Natalia turned 9 months old, though, and nothing had [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":6735,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[5137],"tags":[],"class_list":["post-6734","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-world-news"],"_links":{"self":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/6734","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/comments?post=6734"}],"version-history":[{"count":1,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/6734\/revisions"}],"predecessor-version":[{"id":45782,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/6734\/revisions\/45782"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/media\/6735"}],"wp:attachment":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/media?parent=6734"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/categories?post=6734"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/tags?post=6734"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}