{"id":28819,"date":"2023-04-27T09:00:07","date_gmt":"2023-04-27T09:00:07","guid":{"rendered":"https:\/\/news.cancerresearchuk.org\/?p=25620"},"modified":"2024-11-03T15:12:47","modified_gmt":"2024-11-03T15:12:47","slug":"how-longer-waiting-times-are-impacting-teens-and-young-adults","status":"publish","type":"post","link":"https:\/\/ogkologos.com\/en\/how-longer-waiting-times-are-impacting-teens-and-young-adults\/","title":{"rendered":"How longer waiting times are impacting teens and young adults"},"content":{"rendered":"
<\/div>\n

This April, we\u2019ve been exploring cancer in teenagers and young adults. This age group faces distinct challenges, but it doesn\u2019t always get the attention it deserves. With Teenage and Young Adult Cancer Awareness Month, we\u2019re working to change that.<\/span> <\/span><\/p>\n

Last year, a study we helped fund found that young people <\/span>who <\/span>have to wait<\/span> longer to be diagnosed with cancer are more likely to be clinically anxious, depressed and report lower quality of life following their diagnosis.<\/span> <\/span><\/p>\n

Nearly half of the 830 teenagers and young adults in the study waited longer than 2 months from noticing a possible symptom to attending their first oncology appointment. That\u2019s a long time. Especially when you\u2019re wondering if it could be cancer. <\/span> <\/span><\/p>\n

This group was almost twice as likely to report poorer quality of life, clinical anxiety and depression.<\/span><\/p>\n

We know <\/span>that <\/span>if<\/span> a cancer<\/span> is found earlier<\/span>, it is more likely to be easier to treat. But, with the NHS still recovering from the pandemic, <\/span>waiting times<\/span><\/a> are significantly longer than we\u2019d like. This study looked at 13 to 24-year-olds diagnosed with cancer between 2012 and 2014, and, even then, nearly 60% waited 3 months or more from noticing their first symptom to starting treatment. <\/span> <\/span><\/p>\n

For the first time, it\u2019s now clear that these delays aren\u2019t just impacting young people\u2019s physical health, but they\u2019re havin<\/span>g severe consequences on their <\/span>mental health<\/span><\/a> too. <\/span> <\/span><\/p>\n

The road to diagnosis<\/h2>\n

Dealing with cancer isn\u2019t taught at school. It\u2019s devastating at any time, but it can be especially isolating for young people. Awareness is part of that issue.<\/span> <\/span><\/p>\n

Teens and young adults already have plenty on their minds<\/span> as it is,<\/span> and their bodies are going through lots of changes, too. So, when something feels different<\/span>,<\/span> would your mind jump to cancer? At that age, probably not. <\/span> <\/span><\/p>\n

\u201cThe pathway to cancer diagnosis for teenagers and young adults is complex,\u201d says Dr Lorna Fern, the study\u2019s lead researcher. <\/span> <\/span><\/p>\n

\u201cNot all young people know the signs and symptoms<\/span>,<\/span> which can mean help isn\u2019t sought straight away. For health professionals, cancer in teenagers and young adults can be difficult to diagnose as <\/span>some <\/span>cancer types are rare and symptoms can be vague.\u201d<\/span> <\/span><\/p>\n

It\u2019s easy for symptoms like aches and pains to be attributed to stress or puberty. That means early signs of cancer can be misidentified <\/span>or <\/span>ignored, making it harder to treat when it\u2019s finally diagnosed. <\/span> <\/span><\/p>\n

The moment before contact<\/h2>\n

And, as this new study shows, the uncertainty takes its toll as well.<\/span> <\/span><\/p>\n

At the height of the COVID-19 pandemic, there was a 17% drop in childhood, teenage and young adult cancer in England. While a drop sounds good, clinicians fear this might have been caused by the fact young people were more hesitant to contact their doctor after noticing symptoms.<\/span> <\/span><\/p>\n

There could be all sorts of reasons why you may not want to contact your doctor. But for young people, a big reason is often<\/span> the stress and strain of having to explain themselves through<\/span> multiple appointments. <\/span> <\/span><\/p>\n

\u201cWe hear so often from young people that despite repeated trips to their GP with health concerns, that they have not felt listened to or taken seriously, and how stressful this can be,\u201d says Amy Harding, Deputy Director of Services at Teenage Cancer Trust<\/a>, who part-funded the study.<\/span> <\/span><\/p>\n

While their peers may be worried about exams, starting work, or wondering where to go next year, these teenagers and young adults have completely different, and much heavier, questions weighing on their minds. It\u2019s especially difficult when they don\u2019t feel like their doctors can help answer them.<\/span> <\/span><\/p>\n

The study also found that patients who had three or more GP consultations before they were referred to a cancer specialist were more likely to report poorer quality of life and clinical anxiety. <\/span> <\/span><\/p>\n

All that\u2019s before treatment even starts. \u201cWithout the right psychological support, the experience can damage a young person\u2019s mental health for life,\u201d continues Harding. <\/span> <\/span><\/p>\n

But these aren\u2019t reasons to put off going to the GP. Teenage and Young Adult Cancer Awareness Month is a way of shining a spotlight on cancers in this age group<\/a> so we can start to improve how they\u2019re diagnosed.<\/span> <\/span><\/p>\n

\u201cThe first step in the process of getting help for a possible cancer symptom can feel like a difficult step to take \u2013 but most of the time it\u2019s not cancer and, if it is, getting diagnosed at an early stage could make a big difference,\u201d says Dr Julie Sharp, our head of he<\/span>alth information.<\/span> <\/span><\/p>\n

\u201cThe message from government during the COVID-19 pandemic was to stay at home, but now, if people notice something not normal for them, they shouldn\u2019t delay speaking to their doctor. They want to hear from you, especially if things are getting worse, so keep trying if you can\u2019t get an appointment right away.\u201d<\/span> <\/span><\/p>\n

\n

Ellie\u2019s Story<\/h2>\n

In 2021, at 18 years old, Ellie was diagnosed with Ewing sarcoma. She had pain in her kidney for months, but the initial blo<\/span>od tests came back clear, so no further action was taken.<\/span><\/p>\n

Ellie (right) and her mum, Sam (left)<\/p>

” data-medium-file=”https:\/\/news.cancerresearchuk.org\/wp-content\/uploads\/2023\/04\/Ellie-and-her-mum-Sam.jpg” data-large-file=”https:\/\/news.cancerresearchuk.org\/wp-content\/uploads\/2023\/04\/Ellie-and-her-mum-Sam.jpg” decoding=”async” class=” wp-image-25622″ src=”https:\/\/news.cancerresearchuk.org\/wp-content\/uploads\/2023\/04\/Ellie-and-her-mum-Sam.jpg” alt=”Ellie and her mum, Sam.” width=”167″ height=”187″ srcset=”https:\/\/news.cancerresearchuk.org\/wp-content\/uploads\/2023\/04\/Ellie-and-her-mum-Sam.jpg 224w, https:\/\/news.cancerresearchuk.org\/wp-content\/uploads\/2023\/04\/Ellie-and-her-mum-Sam-150×168.jpg 150w” sizes=”(max-width: 167px) 100vw, 167px”><\/p>

Ellie (right) and her mum, Sam (left).<\/p>\n<\/div>\n

In June 2021, just after completing her A-levels, Ellie went away with her friends. She felt sick for the whole week. When Ellie arrived bac<\/span>k, she was diagnosed with a major kidney infection. After further tests, doctors found a 13cm tumour in her kidney.<\/p>\n

Ellie had an incredibly rare type of bone cancer that didn\u2019t start in her bones.<\/span><\/p>\n

\u201cAs well as kidney pain and sickness, I also had a lot of weight loss. It was put down to exam stress or mental health issues,\u201d says Ellie. \u201cI had never been someone who had been to the doctor a lot, but that did seem like a logical explanation at the time, so w<\/span>e hoped it would improve. But then it just got a lot worse. That\u2019s when I was diagnosed.<\/span><\/p>\n

\u201cThe problem in this age group is that symptoms can get brushed over a lot. They can be put down to other things, which I understand, but it is something that can improve.\u201d<\/p>\n<\/div>\n

What can be done?<\/span><\/span> <\/span><\/h2>\n

There\u2019s a lot we can do to help take care of teenagers and young adults going through canc<\/span>er. We\u2019re<\/span> focusing our research<\/span> into projects like the DETERMINE trial<\/a> to make sure young people get the specialist attention and treatments they need. But to move forward we also have to protect their mental health.<\/span> <\/span><\/p>\n

\u201cNo young person should have to face the trauma of cancer alone,\u201d says Harding.<\/span> <\/span><\/p>\n

\u201cIt is therefore absolutely vital that they are able to refer young people to specially trained psychologists within the NHS.\u201d<\/span> <\/span><\/p>\n

Cancer awareness months are a way of pushing back against that loneliness and isolation. This April, we\u2019ve been working closely with other charities, like Teenage Cancer Trust, to highlight the changes we urgently need to help teenagers and young people with cancer. <\/span> <\/span><\/p>\n

There\u2019s plenty to build on.<\/span> Teenage Cancer Trust ha<\/span>s<\/span> 28 special units in NHS hospitals<\/span><\/a>, <\/span>each with a dedicated team of specialist nurses and support workers. These units are designed to let young people be themselves, giving them the comforts of home during treatment, as well as the chance to spend time with other people their age.<\/span> <\/span><\/p>\n

But to improve mental health we also need to improve the path to diagnosis. Ellie\u2019s story shows how difficult it can be for young people with cancer to find out what\u2019s happening to them, and how scary it can feel when you don\u2019t have the answers.<\/span> <\/span><\/p>\n

\u201cWe don\u2019t yet have the evidence on how to shorten diagnostic times for young people, but we can identify those who may be impacted by their diagnostic journey and provide extra support, such as the holistic care provided by Teenage Cancer Trust\u2019s units an<\/span>d frontline staff,\u201d says Fern. \u201cWith further research, we hope in the future to know how to expedite cancer diagnosis for teenagers and young adults.\u201d<\/span> <\/span><\/p>\n

We\u2019re doing much more than hoping, though. We\u2019ve united with more than 60 cancer charities, as<\/span> One Cancer Voice<\/span><\/a> to petition the Prime Minister for fully funded, ambitious, long-term action on cancer in England. We\u2019re also develo<\/span>ping a <\/span>Manifesto for Cancer Research and Care<\/span><\/a> \u2013 a transformat<\/span>ional approach to improving cancer research and care in the UK. <\/span> <\/span><\/p>\n

This is the first Teenage and Young Adult Cancer Awareness Month. With each one, we\u2019ll have more to offer. <\/span> <\/span><\/p>\n

\n
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To learn more about teenage and young adult canc<\/span><\/span>er symptoms and support,<\/span><\/span> you can visit ou<\/span><\/span>r<\/span><\/span><\/span> About Cancer pages.<\/span><\/span><\/a> <\/span><\/p>\n<\/div>\n<\/div>\n

More on this topic<\/h3>\n<\/p>\n

Source<\/a><\/p>","protected":false},"excerpt":{"rendered":"

This April, we\u2019ve been exploring cancer in teenagers and young adults. This age group faces distinct challenges, but it doesn\u2019t always get the attention it deserves. With Teenage and Young Adult Cancer Awareness Month, we\u2019re working to change that. Last year, a study we helped fund found that young people who have to wait longer […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[5137],"tags":[],"class_list":["post-28819","post","type-post","status-publish","format-standard","hentry","category-world-news"],"_links":{"self":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/28819","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/comments?post=28819"}],"version-history":[{"count":1,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/28819\/revisions"}],"predecessor-version":[{"id":44685,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/28819\/revisions\/44685"}],"wp:attachment":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/media?parent=28819"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/categories?post=28819"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/tags?post=28819"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}