{"id":28797,"date":"2023-04-21T12:00:00","date_gmt":"2023-04-21T12:00:00","guid":{"rendered":"https:\/\/www.cancer.gov\/news-events\/cancer-currents-blog\/2023\/cancer-care-financial-navigation-saves-money"},"modified":"2024-11-03T15:12:47","modified_gmt":"2024-11-03T15:12:47","slug":"financial-navigation-can-reduce-the-financial-toxicity-of-cancer-care","status":"publish","type":"post","link":"https:\/\/ogkologos.com\/en\/financial-navigation-can-reduce-the-financial-toxicity-of-cancer-care\/","title":{"rendered":"Financial Navigation Can Reduce the Financial Toxicity of Cancer Care"},"content":{"rendered":"<p class=\"blog-post-publishing-info\"> <time datetime=\"2023-04-21T12:00:00Z\">April 21, 2023<\/time>, by Carmen Phillips <\/p>\n<div data-entity-embed-display=\"view_mode:media.image_display_article_medium\" class=\"embedded-entity align-right\">\n<figure class=\"image-medium centered-set\">\n<div class=\"centered-element\"> <img decoding=\"async\" loading=\"lazy\" longdesc=\"\/media\/1169606\/long-description\" src=\"https:\/\/www.cancer.gov\/sites\/g\/files\/xnrzdm211\/files\/styles\/cgov_article\/public\/cgov_image\/media_image\/2023-04\/OCC-Cancer-Currents-Conceptual-Cartoon.png?h=920929c4&amp;itok=kXIdOVWZ\" width=\"970\" height=\"546\" alt=\"A conceptual cartoon of financial navigation\"> <\/div><figcaption readability=\"2.5\">\n<div class=\"caption-container no-resize\" readability=\"10\">\n<p>Several studies have now shown that financial navigation programs can help people with cancer and their caregivers save money and improve their quality of life.<\/p>\n<p>Credit: National Cancer Institute<\/p>\n<\/p><\/div>\n<\/figcaption><\/figure>\n<\/p><\/div>\n<p>Results from a new study add to the evidence that programs aimed at reducing the financial burden of cancer treatment can save money and improve the quality of life of people with cancer and their loved ones.<\/p>\n<p>In the study, supported in part by NCI, people undergoing treatment for cancer and their caregivers who participated in <a href=\"https:\/\/ascopubs.org\/doi\/full\/10.1200\/OP.22.00665\">a financial navigation program saved an average of about $2,500 each<\/a>. The results were published March 8 in <em>JCO Oncology Practice<\/em>.<\/p>\n<p>The study focused on the harmful impact of the cost of cancer care, often called <a class=\"definition\" data-glossary-id=\"CDR0000790159\" href=\"https:\/\/www.cancer.gov\/Common\/PopUps\/popDefinition.aspx?id=CDR0000790159&amp;version=Patient&amp;language=en\">financial toxicity<\/a>, specifically for people with blood cancers such as leukemia and lymphoma.<\/p>\n<p>Blood cancers are among the most expensive to treat, said the study\u2019s lead investigator, Jean Edward, Ph.D., R.N., of the University of Kentucky Markey Cancer Center, where the study was conducted.<\/p>\n<p>Treating these cancers often involves bone marrow transplants, grueling treatments that require extended hospital stays and managing potentially deadly side effects like <a class=\"definition\" data-glossary-id=\"CDR0000045703\" href=\"https:\/\/www.cancer.gov\/Common\/PopUps\/popDefinition.aspx?id=CDR0000045703&amp;version=Patient&amp;language=en\">graft-versus-host disease<\/a>. People who get a transplant also need caregivers who can be regularly available for an extended period.<\/p>\n<p>That\u2019s why it was important to include caregivers in the study, Dr. Edward said, noting that \u201ctheir financial toxicity and hardship increases as their loved one gets sicker or if they have lost a partner [to cancer].\u201d Dealing with cancer\u2019s economic costs, she continued, \u201cis often a shared responsibility.\u201d<\/p>\n<p>Financial toxicity has become one of the most pressing issues facing cancer patients, their families, and clinicians who treat cancer, said Janet de Moor, Ph.D., M.P.H, of the Healthcare Delivery Research Program in NCI\u2019s Division of Cancer Control and Population Sciences.<\/p>\n<p>From large cancer centers to small community hospitals, Dr. de Moor said, \u201cthere\u2019s growing awareness that many patients experience financial hardship as a result of their cancer, that it has important downstream impacts for their families, and that [they] need to do something about it.\u201d<\/p>\n<h2>Bankruptcies, foreclosures, and more<\/h2>\n<p>Over the past few years, numerous studies have documented the impact of the high cost of cancer care in the United States. For example, a 2022 study showed that people with cancer <a href=\"https:\/\/ascopubs.org\/doi\/full\/10.1200\/JCO.21.01636\">were 2.5 times more likely to file for bankruptcy<\/a> than people not being treated for the disease.<\/p>\n<p>Another 2022 study found that three-quarters of people being treated for colorectal cancer had what they described <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC8902339\/\">as serious financial hardship during the first year of their diagnosis<\/a>\u2014even though nearly all of the study\u2019s 380 participants had health insurance.<\/p>\n<p>\u201cInsurance doesn\u2019t protect people with cancer against financial hardship,\u201d said the study\u2019s lead investigator, Veena Shankaran, M.D., M.S., of the Fred Hutchinson Cancer Center.<\/p>\n<p>The financial chaos can seep into day-to-day life, causing severe distress and life disruption. For example, a Kaiser Family Foundation survey of people with cancer or who had family members with cancer found that many reported having to drain their savings, buy less food, and change their living situations.<\/p>\n<p>\u201cThe scope of the [financial toxicity] problem is vast,\u201d Dr. Shankaran said.<\/p>\n<p>But some cancer centers and hospital systems are taking steps to warn patients about\u2014and help them manage\u2014the potential financial impact of their care. One study of community cancer centers in the NCI Community Oncology Research Program, for example, <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC8026561\/\">found that about half had a financial navigator<\/a>.<\/p>\n<p>And researchers at several large NCI-Designated Cancer Centers recently tested a system for screening patients with metastatic cancer for worsening health and financial problems. Having this monitoring system in place, they found, <a href=\"https:\/\/ascopubs.org\/doi\/abs\/10.1200\/JCO.2022.40.28_suppl.180\">substantially reduced patient reports of developing or experiencing worsening financial hardship<\/a>.<\/p>\n<p>On a larger scale, in 2019 the Levine Cancer Institute in North Carolina created a financial toxicity tumor board. The board\u2014which consists of oncologists, nurses, patient navigators, financial counselors, and social workers\u2014meets regularly to discuss hospital-wide operations and services that can help patients experiencing financial toxicity.<\/p>\n<p>A team from Levine reported that the board\u2019s work had helped patients treated at the center <a href=\"https:\/\/ascopubs.org\/doi\/full\/10.1200\/OP.21.00124\">avoid up to $60 million in costs<\/a>, including credits for drug costs and insurance co-pay assistance, over 2 years.<\/p>\n<h2>Saving money and reducing distress<\/h2>\n<p>For the study at Markey Cancer Center, Dr. Edward and her colleagues enrolled 54 patients being treated in the center\u2019s Division of Hematology and Bone Marrow Transplant program and 32 of their caregivers.<\/p>\n<p>To conduct the study, nursing staff or medical assistants used two different tools to screen for financial toxicity in patients. One of the tools, called COST, was <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC5298039\/\">developed specifically for identifying people experiencing financial toxicity<\/a>.<\/p>\n<div class=\"callout-box-right\" readability=\"20.404993065187\"><b>Financial Toxicity Affects Caregivers\u2019 Quality of Life<\/b><\/p>\n<p>The quality of life of those closest to people with cancer can be affected substantially by the financial burden of cancer care, according to a new study. The researchers surveyed colorectal cancer survivors and their partners\/caregivers about the financial impact of the survivors\u2019 cancer, including measures for quality of life.<\/p>\n<p>The study findings, published April 6 in <em>JAMA Network Open<\/em>, showed that nearly <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC10080378\/\">70% of partners\/caregivers reported experiencing financial problems, including debt and worry about finances<\/a>. The financial problems harmed their quality of life, including causing sleep loss, fatigue, increased pain, and disruption of social activities.<\/p>\n<\/div>\n<p>Nearly 1,200 patients and caregivers were screened during the study period (April 2021 to January 2022), of whom nearly 300 were \u201cpositive\u201d for financial toxicity and invited to participate in a financial navigation program called CC Links.<\/p>\n<p>Only about 25% of patients agreed to participate, while all caregivers of the participating patients who were invited agreed to be part of the study. Nearly one-third of participants had an income below the federal poverty level, the Markey team reported, but nearly all participants had health insurance.<\/p>\n<p>Through the CC Links program, study participants consulted regularly with a <a class=\"definition\" data-glossary-id=\"CDR0000789804\" href=\"https:\/\/www.cancer.gov\/Common\/PopUps\/popDefinition.aspx?id=CDR0000789804&amp;version=Patient&amp;language=en\">financial navigator<\/a> through in-person visits, phone calls, and email. In addition, the navigator used a tool that regularly surveyed participants specifically about cancer-related financial fallout (e.g., having to borrow money, filing for bankruptcy).<\/p>\n<p>The most commonly reported financial concerns throughout the study were out-of-pocket costs for care, Dr. Edward and her colleagues found.<\/p>\n<p>Navigation was able to help with some of those costs: In total, the financial navigator helped participants secure about $125,000 in financial aid\u2014often in the form of grants\u2014to cover costs of things like travel and drug co-pays and to provide direct financial assistance.<\/p>\n<p>The only substantial improvement for patients was in financially related distress, the team reported, while caregivers reported overall reductions in financial toxicity as well as financially related distress.<\/p>\n<p>\u201cWe were really happy to see that [financial navigation] reduced financial toxicity,\u201d Dr. Edward said. But what the published results don\u2019t capture \u201cis all of the positive feedback we got about the financial navigation from patients and caregivers and the continued relationship [the navigator] had with these individuals.\u201d<\/p>\n<p>It was disappointing, but not necessarily surprising, that so few patients chose to participate, Dr. Edward said. People with cancer are often focused on their treatment, including dealing with side effects. So, initially at least, financial matters often take a back seat, she continued.<\/p>\n<p>\u201cPeople can be overwhelmed with their own medical care,\u201d Dr. Shankaran agreed, particularly the patients included in the Markey study. \u201cThis was a sick population\u201d of patients, she said.<\/p>\n<p>It\u2019s also not unexpected that caregiver participation was so strong, she added.<\/p>\n<p>Their inclusion was \u201ca beautiful thing about this study,\u201d Dr. Shankaran said. \u201cThe team recognized that it\u2019s not just the patient who\u2019s affected by financial hardship, it\u2019s the caregivers as well.\u201d<\/p>\n<h2>Impact on cancer outcomes, more studies on the horizon<\/h2>\n<p>The financial impact of cancer care goes even beyond extreme hardship like bankruptcy or losing your house, Dr. de Moor said. Many studies have found that the high cost of care causes many people to delay or skip treatments or miss appointments. And several studies have linked cancer-related <a href=\"https:\/\/academic.oup.com\/jnci\/article\/114\/6\/863\/6570494\">financial hardship and filing for bankruptcy to earlier death<\/a>.<\/p>\n<p>So the finding that financial navigation can help limit financial toxicity is good news, Dr. de Moor added. But more research is needed, and some is on the way.<\/p>\n<p>Dr. Edward and her colleagues are expanding their work, including launching a study that will add legal guidance to the financial navigation. And Dr. Shankaran is leading an NCI-funded nationwide <a href=\"https:\/\/www.cancer.gov\/clinicaltrials\/NCT04960787\">clinical trial testing the impact of a financial navigation program on both patients and their caregivers<\/a>.<\/p>\n<p>A major question moving forward is the extent to which efforts to reduce financial toxicity will be integrated into the health care system more broadly. The hard reality, however, is that return on investment is part of the calculus for any hospital thinking about providing services like financial navigation, Dr. Shankaran acknowledged.<\/p>\n<p>Part of proving the business rationale for financial navigation will require continued research, Dr. de Moor said. \u201cIt means working to scale up approaches that \u2026 are demonstrated to be effective,\u201d she said. Effective financial navigation can be labor intensive, she continued.<\/p>\n<p>\u201cSo developing ways to streamline [navigation], testing different delivery approaches, <a href=\"https:\/\/ascopubs.org\/doi\/full\/10.1200\/CCI.22.00172\">through a technology solution, for example<\/a>. There hasn\u2019t been a lot of work on that front, but \u2026 it could be useful.\u201d<\/p>\n<p> <a href=\"https:\/\/www.cancer.gov\/news-events\/cancer-currents-blog\/2023\/cancer-care-financial-navigation-saves-money\">Source<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>April 21, 2023, by Carmen Phillips Several studies have now shown that financial navigation programs can help people with cancer and their caregivers save money and improve their quality of life. Credit: National Cancer Institute Results from a new study add to the evidence that programs aimed at reducing the financial burden of cancer treatment [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":28798,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[5137],"tags":[],"class_list":["post-28797","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-world-news"],"_links":{"self":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/28797","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/comments?post=28797"}],"version-history":[{"count":1,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/28797\/revisions"}],"predecessor-version":[{"id":42978,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/28797\/revisions\/42978"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/media\/28798"}],"wp:attachment":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/media?parent=28797"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/categories?post=28797"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/tags?post=28797"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}