{"id":27606,"date":"2021-10-28T01:44:08","date_gmt":"2021-10-28T01:44:08","guid":{"rendered":"https:\/\/cmshub.wpengine.com\/?p=359180"},"modified":"2024-11-03T15:14:11","modified_gmt":"2024-11-03T15:14:11","slug":"teen-created-app-to-help-his-non-verbal-sister-and-others-like-her-communicate","status":"publish","type":"post","link":"https:\/\/ogkologos.com\/en\/teen-created-app-to-help-his-non-verbal-sister-and-others-like-her-communicate\/","title":{"rendered":"Teen Created App To Help His Non-Verbal Sister And Others Like Her Communicate"},"content":{"rendered":"<p><span id=\"content-body\"><\/span><\/p>\n<p><span id=\"content-body\">14-year-old Della Calder is nonverbal due to a rare genetic condition called Bainbridge-Ropers Syndrome, which is caused by changes in the ASXL3 gene.<\/span><\/p>\n<p><span id=\"content-body\">According to <a href=\"https:\/\/sparkforautism.org\/discover_article\/on-the-edge-of-autism\/\" rel=\"noopener\" target=\"_blank\">Spark for Autism<\/a>, it is linked to feeding difficulties, low muscle tone, intellectual disability, and sometimes autism. Della was just one of four people known to have the condition when she was diagnosed in 2012, but doctors have since become more educated on the syndrome.<\/span><\/p>\n<figure id=\"attachment_359205\" aria-describedby=\"caption-attachment-359205\" class=\"wp-caption alignnone\"><span id=\"content-body\"><img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.14.31-PM.png\" alt width=\"617\" height=\"685\" class=\"size-full wp-image-359205\" data-srcset=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.14.31-PM.png 617w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.14.31-PM-304x338.png 304w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.14.31-PM-608x675.png 608w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.14.31-PM-152x169.png 152w\" data-sizes=\"(min-width:1200px) 1200px, (min-width:992px) 992px, (min-width:768px) 768px, (min-width:576px) 480px, 300px\"><\/span><figcaption id=\"caption-attachment-359205\" class=\"wp-caption-text\"><span id=\"content-body\">Photo: <a href=\"https:\/\/www.youtube.com\/watch?v=gaZegNXLbQ8\">YouTube\/Upworthy<\/a><\/span><\/figcaption><\/figure>\n<p><span id=\"content-body\">50 percent of people with Bainbridge-Ropers Syndrome also have autism, including Della.<\/span><\/p>\n<p><span id=\"content-body\"><\/span><\/p>\n<p><span id=\"content-body\">Since she was young, she engaged in repetitive behaviors, such as shaking her head, made poor eye contact, had difficulty with language and disliked changes to her routine.<\/span><\/p>\n<figure id=\"attachment_359204\" aria-describedby=\"caption-attachment-359204\" class=\"wp-caption alignnone\"><span id=\"content-body\"><img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.09.48-PM-1200x569.png\" alt width=\"1200\" height=\"569\" class=\"size-large wp-image-359204\" data-srcset=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.09.48-PM-1200x569.png 1200w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.09.48-PM-600x285.png 600w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.09.48-PM-300x142.png 300w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.09.48-PM-768x364.png 768w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.09.48-PM.png 1440w\" data-sizes=\"(min-width:1200px) 1200px, (min-width:992px) 992px, (min-width:768px) 768px, (min-width:576px) 480px, 300px\"><\/span><figcaption id=\"caption-attachment-359204\" class=\"wp-caption-text\"><span id=\"content-body\">Photo: <a href=\"https:\/\/www.youtube.com\/watch?v=gaZegNXLbQ8\">YouTube\/Upworthy<\/a><\/span><\/figcaption><\/figure>\n<p><span id=\"content-body\">Her 16-year-old brother Archer has always wanted to easily communicate with his sister, but realized that she didn\u2019t have any easy, affordable access to communication tools. He knew that if his sister struggled with this, so did a lot of other families.<\/span><\/p>\n<p><span id=\"content-body\">Archer made it his mission to find a way to help others who are struggling with these same communication gaps.<\/span><\/p>\n<figure id=\"attachment_359207\" aria-describedby=\"caption-attachment-359207\" class=\"wp-caption alignnone\"><span id=\"content-body\"><img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.17.30-PM-1200x652.png\" alt width=\"1200\" height=\"652\" class=\"size-large wp-image-359207\" data-srcset=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.17.30-PM-1200x652.png 1200w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.17.30-PM-600x326.png 600w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.17.30-PM-300x163.png 300w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.17.30-PM-768x417.png 768w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.17.30-PM.png 1207w\" data-sizes=\"(min-width:1200px) 1200px, (min-width:992px) 992px, (min-width:768px) 768px, (min-width:576px) 480px, 300px\"><\/span><figcaption id=\"caption-attachment-359207\" class=\"wp-caption-text\"><span id=\"content-body\">Photo: <a href=\"https:\/\/www.youtube.com\/watch?v=gaZegNXLbQ8\">YouTube\/Upworthy<\/a><\/span><\/figcaption><\/figure>\n<p><span id=\"content-body\">Archer worked hard to create something to assist these people who needed more affordable options, and in January 2020, he coded an app called Free Speech.<\/span><\/p>\n<p><span id=\"content-body\"><\/span><\/p>\n<p><span id=\"content-body\">Free Speech is a program that helps non-verbal people and allows the use of a series of buttons to produce sentences that helps them communicate easily. The buttons have visual symbols to represent different words. Custom keys are included, but the app comes pre-loaded with an expansive vocabulary.<\/span><\/p>\n<figure id=\"attachment_359206\" aria-describedby=\"caption-attachment-359206\" class=\"wp-caption alignnone\"><span id=\"content-body\"><img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.16.57-PM.png\" alt width=\"996\" height=\"655\" class=\"size-full wp-image-359206\" data-srcset=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.16.57-PM.png 996w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.16.57-PM-514x338.png 514w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.16.57-PM-257x169.png 257w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.16.57-PM-768x505.png 768w\" data-sizes=\"(min-width:1200px) 1200px, (min-width:992px) 992px, (min-width:768px) 768px, (min-width:576px) 480px, 300px\"><\/span><figcaption id=\"caption-attachment-359206\" class=\"wp-caption-text\"><span id=\"content-body\">Photo: <a href=\"https:\/\/www.youtube.com\/watch?v=gaZegNXLbQ8\">YouTube\/Upworthy<\/a><\/span><\/figcaption><\/figure>\n<p><span id=\"content-body\">Whether it\u2019s mobile, desktop, or a tablet, Free Speech will work on any device that has an internet connection.<\/span><\/p>\n<p><span id=\"content-body\">Before putting the app out there, Archer posted a video of his sister trying it out on TikTok. Thousands of people fell in love with the idea, and Archer worked with other developers to help bring his idea to life.<\/span><\/p>\n<figure id=\"attachment_359208\" aria-describedby=\"caption-attachment-359208\" class=\"wp-caption alignnone\"><span id=\"content-body\"><img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.20.05-PM.png\" alt width=\"1015\" height=\"661\" class=\"size-full wp-image-359208\" data-srcset=\"https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.20.05-PM.png 1015w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.20.05-PM-519x338.png 519w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.20.05-PM-260x169.png 260w, https:\/\/d1dd4ethwnlwo2.cloudfront.net\/wp-content\/uploads\/2021\/10\/Screen-Shot-2021-10-27-at-8.20.05-PM-768x500.png 768w\" data-sizes=\"(min-width:1200px) 1200px, (min-width:992px) 992px, (min-width:768px) 768px, (min-width:576px) 480px, 300px\"><\/span><figcaption id=\"caption-attachment-359208\" class=\"wp-caption-text\"><span id=\"content-body\">Photo: <a href=\"https:\/\/www.youtube.com\/watch?v=gaZegNXLbQ8\">YouTube\/Upworthy<\/a><\/span><\/figcaption><\/figure>\n<p><span id=\"content-body\">\u201cEven if it helps one person \u2013 even if that one person is my sister \u2013 it\u2019s still worth it to me, to put in those hours,\u201d Archer to Upworthy.<\/span><\/p>\n<p><span id=\"content-body\">Learn more in the video below, or <a href=\"http:\/\/freespeechaac.com\" rel=\"noopener\" target=\"_blank\">click here<\/a> to visit the Free Speech website.<\/span><\/p>\n<p> <span id=\"content-body\"><noscript><\/p>\n<p><iframe loading=\"lazy\" title=\"Upworthy Voices: Archer created an app to help his sister speak\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/gaZegNXLbQ8?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen=\"allowfullscreen\"><span id=\"content-body\"><\/span><\/iframe><\/p>\n<p><\/noscript><\/span> <\/p>\n<div id=\"ctg-cta\" readability=\"7\">\n<p><img decoding=\"async\" src=\"https:\/\/blog.thebreastcancersite.greatergood.com\/wp-content\/themes\/causeblog-v3\/assets\/img\/icon-bcs-support.png\" alt><\/p>\n<h5>Provide Mammograms<\/h5>\n<p>Support those fighting Breast Cancer at <span>The Breast Cancer Site<\/span> for free! 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According to Spark for Autism, it is linked to feeding difficulties, low muscle tone, intellectual disability, and sometimes autism. Della was just one of four people known to have the condition when [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[5137],"tags":[],"class_list":["post-27606","post","type-post","status-publish","format-standard","hentry","category-world-news"],"_links":{"self":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/27606","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/comments?post=27606"}],"version-history":[{"count":1,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/27606\/revisions"}],"predecessor-version":[{"id":45115,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/posts\/27606\/revisions\/45115"}],"wp:attachment":[{"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/media?parent=27606"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/categories?post=27606"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ogkologos.com\/en\/wp-json\/wp\/v2\/tags?post=27606"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}